Cerebral Palsy

For those of you who know me (Auntie Janine Wilson) it will come as no surprise to you that on February, 26th 2012 I will be swimming the Rottnest Channel Swim in Western Australia.  This is a 19.7 km open water swim from Cottesloe Beach to Rottnest Island.  The difference this time round is that my beautiful daughter Tess will be on a surf ski next to me as my support crew. (Some of you may remember Tessa’s commitment to my craziness when she stood in torrential rain for 12 hrs 40 mins in NZ when I raced in the Iron-woman event.

So why a 19.7 km swim? Well we are doing this to raise money for our gorgeous niece / cousin Tilly Wilson, she was born with Cerebral Palsy in 200r8 and having Cerebral Palsy means that all the things we take for granted physically are a struggle for Tilly.  Simple things like sitting, crawling, walking and talking are some of the daily tasks early intervention can help her achieve.  Equipment and specialised care expensive but so far have made a huge difference.

The immediate goal is to raise funds to help purchase a communication device before she starts school next year.  Tilly is a 4 year old that has plenty to say (she is a Wilson) but just needs a different way to communicate.

I would really love for you to get behind me on this cause to “HELP TILLY TALK” by offering a small donation towards my goal.

Tilly’s smile lights up a room, her energy and vibrancy is infectious.  You could swim a marathon on that alone.  If I can raise some money to help purchase a communication device it would be a wonderful achievement.

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“Dear Tilly, Such a beautiful brave little girl, my daughter would love you. xxx ”
– Stuart & Bernie Thistlewood

“Good luck Janine on the swim, Good luck Tilly at School. ”
– Anthony Hartley

“Good Luck Tilly – you are one amazing little girl. You have very special parents and the incredible Janine who is going to swim 20kms for you! Good luck to you too Janine!”
– Mischa Traynor

“I pray that you will have a wonderful and happy life, may your dreams come true.”
– Susan Rigato

“hEY WILSONS! Sorry its sucha tiny donation!! Will donate more when i am working full time again. So much going on with finishing work and preparing to move to canada.. I’ll buzz ya before i go xxxxx”
– MELISSA HOLDEN

“ ”
– Shirley & Phillip Price

“Such a positive attitude, how could one not support. Swim well. For Tilly, best wishes and love.”
– Joanne Cochrane

“What a lovely Auntie you are Janine and good luck with your swim.”
– Linda O’Connor

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Team Tilly Melbourne 2011

by admin on September 6, 2011

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Team Tilly Melbourne 2011

A big thank you to everyone that made it down to Melbourne’s Tan Track for this years Team Tilly event.   It’s because of your support that Tilly is able to access the equipment and therapy required to get Tilly up and about and this puts a huge smile on our little girls face, so our family can’t thank you enough.

The day would not have been a big success without the help from Sally, Nod, Julie, Steven, Cath, Ann, Mel, Darren, Naddy & Thomo you guys did an amazing job THANK YOU!

 And a big thanks to Annie for her world famous cup cakes!

-xxx-

Special THANKS to Hunter Promotional Products for the amazing Team Tilly 2011 caps & Jason from Bob Petigree Meats  for providing the sausages.  318 Victoria St North Melb & Shop 39 Queen Vic Markets.

Last year we raised enough funds to purchase Tilly a mobility walker, supportive seating system and a specialised potty, shower & bath chair.  From this, Tilly has found some independence in getting around the house in her walker, she can sit with her family at the dinner table in her new chair and has done a heap of poos & wees in her cool potty and the Wilson family are extremely  grateful for all our help and support.

This year Tilly is looking at purchasing a wheelchair, this is one of those big ticket items that can cost around $15,000. Our Government does help with part of the cost but there will be a pretty big short fall so all money raised with go towards Tilly’s wheelchair.

MESSAGES OF SUPPORT & DONATIONS

“MRT footy tipping is proud to be able to help our Till kick all her goals! Yeh Till!!!!”

– Sean Desbois

“Hi Tilly, I work with your Aunty Sal and she often tells me what an amazing little girl you are – I have seen some great pictures you have sent her. I hope this small donation goes a bit of a way to helping you out. Bec x”
– Bec Dahl

“You are beautiful Tilly Love and peace Ange”
– Sally Freeman

“Great event – well done Sally – Best wishes to Matilda”
– Peter Stratmann

“All the best Team Tilly on Sunday!”

– Diana Marco

“All the best Team Tilly!”
– Biljana Apostolova

“Go Team Tilly Go!!!”
– Camille Lynch

“All the best on Sunday, Team Tilly”

– Tina Rogers

“A great cause”
– Jason Walker

“keep up the good work Tilly and Angie, Nicole Ross + Kids”
– Nicole Sanfedele

“Thank-you to Sally for introducing this beautiful page to me. I apologise for not attending the Team Tilly Melbourne walk, but I hope my little contribution helps this inspirational/happy little girl.”
– Ashlee Woodhouse

“We Love you Tilly Sofia, Secret, Kaiser and Oskar”
– Tina Goetz

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GB Orthopaedics BRISBANE

July 22, 2011

Tilly is the proud new owner of orthoptic boots, custom made by the talented hands at GB Orthopaedics.  ‘Tilly Boots’ are an attractive, practical, stabilising pair of shoes that give Tilly the extra support that is needed with an emphases on cute kid style and comfort. As a mother of a 3 year old with Cerebral Palsy, [...]

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Accidental politician

May 26, 2010

Accidental politician Kelly Vincent seeks change for disabled. THE youngest woman to enter an Australian parliament is an accidental politician whose life took an unexpected turn after she made a last-ditch bid for a new wheelchair.  News story published in The Australian 13th May 2010 Read Story – click here

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What Is Cerebral Palsy

May 23, 2010

If you don’t have a child with disabilities, then cerebral palsy may seem like a tragedy to you. Well it isn’t. Do I wish she didn’t have it? Of course I do. We all have our weaknesses, and while Tilly’s may be more involved and more obvious, they’re now part of who she is. We [...]

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